Agenda
Monday, December 11, 2023 and Tuesday, December 12, 2023
12:00 p.m. to 4:00 p.m. EDT (both days)
This is a virtual event.
| DAY 1 – Monday, December 11, 2023 | |
|---|---|
| 12:00 p.m. - 12:15 p.m. | Welcome |
| Tessie October, M.D., M.P.H., Medical Officer National Institute of Child Health and Human Development (NICHD) |
|
| Opening Remarks | |
| Alison Cernich, Ph.D., ABPP-Cn, Deputy Director, NICHD | |
| 12:15 p.m. - 12:35 p.m. | Epidemiology of Pediatric Palliative Care |
| Chris Feudtner, M.D., Ph.D., M.P.H. Children's Hospital of Philadelphia |
|
| Cross-Cutting Themes in Pediatric Palliative Care Research | |
| Moderator: Tracy King, M.D., M.P.H. | |
| 12:35 p.m. - 12:55 p.m. | Health Equity Research in Pediatric Palliative Care |
| Khaliah Johnson, M.D. Emory University School of Medicine |
|
| 12:55 p.m. - 1:15 p.m. | Vulnerable Populations |
| Jori Bogetz, M.D. Seattle Children's Hospital, WA |
|
| 1:15 p.m. - 1:35 p.m. | Symptom Management and Measurement |
| Jamie Feinstein, M.D., M.P.H. University of Colorado, Denver/ Children's Hospital Colorado |
|
| 1:35 p.m. - 1:50 p.m. | Panel Discussion/Q&A |
| Chris Feudtner, M.D., Ph.D., M.P.H. | |
| Khaliah Johnson, M.D. | |
| Jori Bogetz, M.D. | |
| Jamie Feinstein, M.D., M.P.H. | |
| 1:50 p.m. - 2:05 p.m. | Break |
| Scientific Methodology and Resources | |
| Moderator: Karen A. Kehl, Ph.D., R.N., FPCN | |
| 2:05 p.m. - 2:25 p.m. | Intervention Science and Clinical Trials Research |
| Abby Rosenberg, M.D., M.S., M.A. Dana-Farber Cancer Institute, MA |
|
| 2:25 p.m. - 2:45 p.m. | Available Databases for Palliative Care Research |
| Lisa Lindley, Ph.D., R.N., FPCN, FAAN University of Tennessee Knoxville |
|
| Research in the Critically Ill | |
| Moderator: Robert “Bob” Tamburro, M.D., M.Sc. | |
| 2:45 p.m. - 3:05 p.m. | Pediatric Palliative Care in the Pediatric Intensive Care Unit |
| Sabrina Derrington, M.D., M.A., HEC-C Children's Hospital of Los Angeles, CA |
|
| 3:05 p.m. - 3:25 p.m. | Pediatric Palliative Care in the Neonatal/Perinatal Population |
| Renee Boss, M.D., M.H.S. Johns Hopkins University |
|
| 3:25 p.m. - 3:40 p.m. | Panel Discussion/Q&A |
| Lisa Lindley, Ph.D., R.N., FPCN, FAAN | |
| Sabrina Derrington, M.D., M.A., HEC-C | |
| Renee Boss, M.D., M.H.S. | |
| 3:40 p.m. - 3:50 p.m. | CLOSE |
| Tessie October, M.D., M.P.H., Medical Officer, NICHD | |
| DAY 2 – Tuesday, December 12, 2023 | |
|---|---|
| 12:00 p.m. - 12:10 p.m. | Welcome |
| Tessie October, M.D., M.P.H., Medical Officer National Institute of Child Health and Human Development (NICHD) |
|
| Opening Remarks | |
| Rohan Hazra, M.D., Director, Division of Extramural Research, NICHD | |
| 12:10 p.m. – 12:40 p.m. | Expert Panel Discussion – Major Challenges to the Research Field |
| Moderator: Valerie Maholmes, Ph.D., CAS | |
| Toluwalasé "Lasé" A. Ajayi, M.D., F.A.A.P. Rady Children’s Hospital - San Diego |
|
| Danielle Decourcey, M.D., M.P.H. Boston Children's Hospital, MA |
|
| Erica C. Kaye M.D., M.P.H., FAAHPM St. Jude Children’s Research Hospital |
|
| Pamela S. Hinds, Ph.D., R.N., FAAN Children's National Hospital |
|
| Psychosocial Impact of Pediatric Palliative Care | |
| Moderator: Lori Wiener, Ph.D., DCSW, LCSW-C | |
| 12:40 p.m. - 1:00 p.m. | Bereavement Research for Parents, and Pregnant/Lactating People |
| Barbara L. Jones, Ph.D., M.S.W. The University of Texas at Austin |
|
| 1:00 p.m. - 1:20 p.m. | Family Impact of Serious Illness |
| Kim Mooney-Doyle, Ph.D., R.N., CPNP-AC University of Maryland School of Nursing |
|
| 1:20 p.m. - 1:40 p.m. | Caregiver Impact of Serious Illness |
| Justin Yu, M.D., MS University of Pittsburgh, PA |
|
| 1:40 p.m. - 1:55 p.m. | Panel Discussion |
| Barbara L. Jones, Ph.D., M.S.W. | |
| Kim Mooney-Doyle, Ph.D., R.N., CPNP-AC | |
| Justin Yu, M.D., M.S. | |
| 1:55 p.m. – 2:10 p.m. | BREAK |
| Ethical Challenges of Pediatric Palliative Care Research | |
| Moderator: Mihaela Stefan, M.D., Ph.D. | |
| 2:10 p.m. – 2:25 p.m. | Consent/Assent |
| Erin Paquette, M.D., J.D., M.Be. Lurie Children’s Hospital of Chicago, IL |
|
| 2:25 p.m. – 2:40 p.m. | Ethical Decision-making ECMO, PICU, NICU |
| Katie Moynihan, M.B.B.S. Boston Children's Hospital, MA |
|
| 2:40 p.m. – 2:55 p.m. | Adolescent Decision-Making |
| Cindy Bell, Ph.D., R.N. Corewell Health |
|
| 2:55 p.m. – 3:10 p.m. | Panel Discussion |
| Erin Paquette, M.D., J.D., M.Be. Katie Moynihan, M.B.B.S. Cindy Bell, Ph.D., R.N. |
|
| Building the Field of Pediatric Palliative Care | |
| Moderator: Tessie October, M.D., M.P.H. | |
| 3:10 p.m. – 3:25 p.m. | Workforce Needs |
| Tammy Kang, M.D., MSCE, FAAHPM Baylor College of Medicine, Texas Children's Hospital |
|
| 3:25 p.m. - 3:50 p.m. | Top 5 Research Questions: Speed Round |
| Chris Feudtner, M.D., Ph.D., M.P.H. | |
| Renee Boss, M.D., M.H.S. | |
| Jori Bogetz, M.D. | |
| Tammy Kang, M.D., MSCE, FAAHPM | |
| 3:50 p.m. – 4:00 p.m. | CLOSE |
| Tessie October, M.D., M.P.H., Medical Officer, NICHD | |